I have been home now for 11 days. I have no plans to get on a plane for 17 more days. Even with my rudimentary math skills, I calculate 28 days at home in Park City at 7000 feet. That’s nearly a month. That hasn’t happened since January, if I remember right. And back then,…
Pelotonia
“Let’s See What Happens”
I suppose my entire experience with Thymic Cancer has revolved around “Let’s see what happens.” I suppose everyone who lives clinical trial to clinical trial can claim that as well, rightfully so. As of Thursday, I am in a new “Let’s See What Happens” phase, but one that is not going to push my cancer…
Change Your Mind
Wow. This post might have been better named “Change Your Course.” I started down one little tributary and ended up in a completely different rushing river. Here’s the tributary (illustrated, of course): We either have been that person (ARE that person… and in that case, what are you doing here?) or know that person. We…
Never Surrender, (Dorothy)!
OK, So the title of this blog is a negative: “NEVER surrender.” Much different than my usual positive messages of DEFY! LIVE FEARLESSLY! EAT PIE FOR BREAKFAST! Sometimes, putting myself at the helm of the battleship every minute of every day gets a bit tiresome (except for the “pie for breakfast” part). I just keep…
Good News With no *’s or BUT’s or Qualifications
I have had a couple of Very Good Days in a row. Not good days relative to other days, but genuinely good days, full of good news and forward movement. My CT scan showed no disease progression, even though I’ve been off the Everolimus for a month. Doctor Akerley used the word “remarkable,” which is…
RX => R and R (and then whatever comes next)
I’m going to pretend like three weeks didn’t just whiz by with no update. Because there’s a pretty good update. The bronchoscopy revealed that I had an impressively gnarly Pneumocystis jirovecii Detect by Real-Time PCR (that’s what my chart says). My docs think I may have had it since my first pneumonia back in November. That…