Maybe I just like the perfection of timing of it, but I am ending 2018 in the most perfect way. December 31 was my last Proton Therapy session. That’s 20 down, 0 to go, if you’ve been counting along with me. I got my discharge papers, my graduation certificate and photos of ringing the Bell…
Clinical trials
All I Want for Christmas is a Successful Appeal, A Super Successful Proton Therapy Experience, and World Peace. (Is That so Much to Ask?)
The lead in this story is that the proton therapy is working. I’m 15 days in now (5 to go!). Dr Simone said I probably wouldn’t notice improvements in breathing and heart function for two weeks, but things started getting better after five days. My heart rate used to cap out at about 117 during…
A Bit of Reality, then things got unBELIZEable (and now, I can’t Belize it, but I’m in the hospital)
“Well, your disease is stable. In a couple of places, we could say there’s a small amount of shrinkage.” Everyone stares at everyone until I say, “Well, that complicates things doesn’t it?” I’d added on one more month of the CRLX101 trial, just to keep that option open after my last CT scan showed growth,…
A Change Would Do You Good
Allow me to pilfer Sheryl Crow lyrics to head up this post. The song has been bouncing around in my head for a couple of weeks now. That and David Bowie’s Ch-ch-changes. Guess what: Changes in my protocol are looming. And that’s a good thing. I haven’t altered my lifestyle much except for the intensity…
Yes, You Can or YES, YOU CAN!
You can pick up doses of inspiration where you least expect it. I was suffering through an Orangetheory Fitness class about a year ago with a coach I had decided I wasn’t going to like. I thought she was too serious and kind of stern… I thought she was exactly what I didn’t want at…
(Pelicania*) Pelotonia
If it’s the first weekend in August, I must be in Columbus. And it was, and I was. My fourth Pelotonia weekend was as hopeful and inspiring and fun and powerful as the ones before. Not that anyone can with certainty, but I can’t predict Pelotonia happening for me a year away, so I’m always…