I’m in my Room With a View at the NIH. I’m eating peanut M and M’s and watching “Rudolph the Red-nosed Reindeer,” with 10 minutes of commercials, even though I own the DVD. I have, so far, come through the first component of my new CRLX101 trial unscathed. I feel positively unscathed!V As promised, it’s…
Clinical trials
Wherever Flux is, I am deep in it.
Where was I? I have sat down to write an update a half dozen times in the last few weeks, but I would have had to update the update a half dozen times, sometimes daily. I’m in the washout period between trials and actually feel a little better every day. It’s been more than two…
#Neverthelessshepersisted
Did you know that Diet Coke is even fizzier when it comes back up? At least if it makes its return in 30 seconds. That is now a proven fact. I was expecting no drama from my biopsy on Monday, but there was a bit, and it was self-admittedly self-inflicted. I don’t mind anesthesia; I…
There’s a Game of Jenga at the Fork
It’s true. Strategerizing my way forward now is starting to feel like Cancer Care Jenga. Jenga is the game where you build a tower of wooden blocks, then, with thoughtful consideration (or not), pull the blocks out one at a time and restack them on top until the whole thing comes tumbling down. One decision…
What a Difference 8022 Bikes Make (or One, When it’s yours.)
He rolled up around mile 60 of the first day and asked about my Pelotonia jersey, which reads “SURVIVOR” on the back. “When?” he asked. I responded, “The first time was in 2001. The second was around four years ago, and I’m working on number 3.” I can still get that heartbeat of surprise and…
I am Only “Mostly Stable”
An adaptation of a great line from one of my favorite movies keeps rolling around in my head after finding out that, guess what? My disease is NOT not growing at all. Upon closer inspection of my radiology reports from the last 20 months, Dr G says there are two lesions in my lung lining…