I’m in. I didn’t get the port installed for nothing after all. On August 14 (I know, I’ve been slack), I started the PD-1 trial at Georgetown, with Dr Giaccone. I am lucky number 18 in the trial. That, of course, means that I made my Neutrophil number (1900!). Neutrophils shouldn’t be as big a…
Health
One Goal
I am still processing the massive amount of input I sucked in at Pelotonia, but I think writing through it will help. It usually does. These three days in Columbus stoked hope and inspiration, even as they brought news that broke my heart and rattled my confidence. Let’s start with the good. My friend, Doug Ulman,…
Well, That was Unexpected.
Rarely is it good news when that thought runs through your head at your cancer doctor’s office. And this was not one of those occasional occurrences. I went to the NCI for my 3-week visit, and it will be my last one, at least for the foreseeable future. The Sutent isn’t working anymore. The tumors…
Ragbrai-e-i-e-i-o
The (Des Moines) Register’s Annual Great Bicycle Ride Across Iowa. Or Ragbrai, for short. It began in 1973, and every year travels the state West to East (or from coast to coast, as I keep saying). Riders traditionally dip their wheels into the Missouri River at the start and the Mississippi at the end. It’s…
Life is One Big Adventure if You Just Say Yes
Where was I? Ah, rejoining the Road to Discovery in Salt Lake City after getting great, though disturbingly and familiarly last-minute good news about my Neutrophils showing up to the party. After a quick couple of days of reintroducing myself to Emmitt Smith and Lucy, we headed off to very very hot Nevada. We average just…
The Base Hit
1270! That’s approximately 333 more Neutrophils (or, again, whatever the measure of Neutrophils is) than I needed to stay in the clinical trial. It took 5 blood tests in 3-states to get there, but I am IN, still on the team. I’m not a worrier, but I have to admit, it is a big relief….