I suppose my entire experience with Thymic Cancer has revolved around “Let’s see what happens.” I suppose everyone who lives clinical trial to clinical trial can claim that as well, rightfully so. As of Thursday, I am in a new “Let’s See What Happens” phase, but one that is not going to push my cancer…
Travel
Change Your Mind
Wow. This post might have been better named “Change Your Course.” I started down one little tributary and ended up in a completely different rushing river. Here’s the tributary (illustrated, of course): We either have been that person (ARE that person… and in that case, what are you doing here?) or know that person. We…
Let There Be Light
I just reread my last post, as I always do before I write a new one. That girl was a downer. As it (almost) always does, life brightened back up significantly in the last FIVE WEEKS since I’ve posted. It’s not that I haven’t had updates or fun adventures to document here, it’s just that…
All I Want for Christmas is a Successful Appeal, A Super Successful Proton Therapy Experience, and World Peace. (Is That so Much to Ask?)
The lead in this story is that the proton therapy is working. I’m 15 days in now (5 to go!). Dr Simone said I probably wouldn’t notice improvements in breathing and heart function for two weeks, but things started getting better after five days. My heart rate used to cap out at about 117 during…
A Bit of Reality, then things got unBELIZEable (and now, I can’t Belize it, but I’m in the hospital)
“Well, your disease is stable. In a couple of places, we could say there’s a small amount of shrinkage.” Everyone stares at everyone until I say, “Well, that complicates things doesn’t it?” I’d added on one more month of the CRLX101 trial, just to keep that option open after my last CT scan showed growth,…
Polarbearland
You know when you talk about something you want to do for years and years, and then when you are finally on the brink of doing it, you’re slightly apprehensive that you may have overbuilt expectations? Yeah, that didn’t happen. The Arctic was everything I hoped it would be. My brother, Al, sister-in-law, Sheryl, and…