• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar

Wendy Chioji

Live Fearlessly

  • Home
  • About Me
    • Videos
    • Photos
  • Surviving & Thriving
    • The Cancer Chapters
      • Chapter II
      • The Cancer Diaries (Cancer Part I)
  • Conquering Kilimanjaro
    • Lessons From the Climb
  • Growing Bolder
  • Support Me

And A(round 2) We Go

December 13, 2017 11 Comments

The rest of Cycle one of CRLX101 wasn’t as uneventful as the first day of infusion led me to believe it would be; I am not unscathed after all. (Did I really venture to say I was unscathed OUT LOUD?) There was actually a bit of scathing that went on as the days went on. No nausea (so far) (although I think I’m safe on this count now) (but I didn’t say that out loud), which had gotten pretty tiresome, but there are some new and impressive side effects to grab my attention, all from the Olaparib, the oral med.

But first, because of the possibility of more hair thinning AND to eliminate evidence of hair thinning from my last trial (which was not a listed side effect), Jessie chopped my hair off. There was enough for Pantene’s Beautiful Lengths program, which makes real hair wigs for women who need them.

iPhone photo not the most flattering. But Jessie looks good.

Sending off locks for the second time ever!

This is the best photo I have of the new hair so far. It’s Linus and me testing the Skype shot for Growing Bolder’s Boldy Awards Show. Linus was intense.

Not long after that, the Olaparib made its presence known. At exactly the time that I returned to work as a Mountain Host at Deer Valley. Everything hurt. My bones.. My ribs. My shoulders. Moving. Walking. Breathing. It sucked to be me, frankly. I was concerned enough to reach out to my team at the NIH. Dr Thomas called me back within hours for details. He asked if I’d done anything out of the ordinary. How to answer that?  I said I’d been skiing for the first time this year and it was 21 degrees and I was outside most of the day. He said that’s probably what sent me over the edge. He said I could take 2 Motrin (400 mgs). Amateur dose. I’m more of a 600 mgs, twice a day kind of girl. I compromised. That’s all you need to know. The muscle and bone soreness ebbed, but still hasn’t gone away. I’m hoping it will, as I get used to different drugs in my system.

Not much snow yet, but it’s cold, cold cold!

Then, there’s the breathtaking breathlessness. I can’t breathe. Well, I can breathe, but not like I’m used to, with the flexy, resilient, expanded lungs of an athlete. I inhale until my ribs make me say “uncle.” Once again, I’m sure I’m going to give myself Pneumonia, not taking full breaths. Albuterol is (for) now my constant companion. I need it to get out of bed and to go to bed. And for most exertion in between. Training/exercising is a duck in a bar (a joke, my only one). For the first time ever, after weeks of being in my orange (training) zone in my Orange Theory classes 25 minutes or more, I actually goose-egged. And I was working as hard as my lungs and squeezed heart would let me:

Who knew this was even possible? Not me.

Miraculously, my WBCs are not in a drug-related free fall. My RBCs and platelets are a little low, which Dr Thomas says may be a (or THE) cause of the crazy fatigue I have now. (Did I mention I’ve slept more 8-hour nights in the last ten days than I have in all of 2017?). So I am having my first ever BLOOD TRANSFUSION today. And for the first time ever, I know my blood type. O positive. How crazy is it that I haven’t known my blood type until now?  Eye roll.

It’s a brave new world. So what’s the positive spin on all of this? If it’s working, this is the first trial I’m in that looks like it’s not going to make me nauseated (I didn’t say that OUT LOUD, ps). I will keep my Delta Silver Status and most likely make Gold shortly. I get to see my family every 11 days (at the most) til whenever. I am well enough to spend time with my friends piling up more adventures. I’m feeling good enough to keep working at my lovely Deer Valley and hope to travel again for Ivanhoe in the next month or so. I recently decided I  DO like hot yoga after all (thanks, Angie), which is a good thing because it’s the only thing that makes my breathing and rib soreness abate (somewhat). I WON’T say “At least I’m out there on the bike/tready in  the OTF class/Pilates class/yoga class” because I’m used to much more out of myself than that. Plus, that saying drives me crazy, even though I have caught myself saying it more than twice. I still love all those activities for the physical part and the social part. And I’m going to keep doing those activities to build or at least maintain strength and fitness for whatever is around the corner.

For a few days last week, the Olaparib tried to kill my appetite. But my appetite is quite the warrior, and it is back. AND there was fried chicken, corn on the cob and a biscuit on the lunch menu today at the NIH. And life, though challenged in new ways all the time, is good. #Ilovecarbs #defy

Hospital food. Who knew?

Filed Under: Chapter II, Clinical trials, Health, Livestrong, Pelotonia, The Cancer Chapters

Previous Post: « A Room With a View
Next Post: Hair for the Holidays »

Reader Interactions

Comments

  1. Jackie Brockington

    December 13, 2017 at 3:29 pm

    Keep going Wendy. You are so awesome. Thank youh for sharing your journey.

    Reply
  2. L.C. Johnson

    December 13, 2017 at 4:21 pm

    Wendy, continuing to pray and pull for you like crazy. Know that you are never far from my thoughts and that you are an amazing inspiration to many. Sending you much Love and Light. Namaste

    Reply
  3. Jean B Bauman

    December 13, 2017 at 8:00 pm

    Good News. If you need any O+ blood, I’m your Huckleberry! Love, Jean

    Reply
    • Jen

      December 14, 2017 at 3:59 pm

      Me too!
      I’ll give you some O+ any day!

      Reply
  4. Carl A Dixon

    December 14, 2017 at 2:48 pm

    I am sitting here preparing a Christmas sermon getting frustrated – then i read your post have now been encouraged and feel foolish compared to your struggles. I am praying for you. I will be thinking of you as i ride my bike 40 miles at 5 AM in Florida warmth. Thank you for your inspiration.

    Reply
  5. Judy Kohl Hipper

    December 14, 2017 at 8:19 pm

    You are hope and inspiration to so many people. A shining star we can rely on.

    Reply
  6. Joseph

    December 15, 2017 at 7:35 am

    Wendy, I use to watch you on the news , then I ran a 5k with you here in Orlando. When you retired from news casting I was sad but then I found out you had cancer I was even more saddened. Now I have cancer but nothing compared to What you are going through. Stay strong, live strong knowing we are with you all the way. J. Velasquez.

    Reply
  7. Scott Stachowiak

    December 15, 2017 at 11:29 am

    You rock, Wendy.

    Reply
  8. Maxine Jimenez

    December 16, 2017 at 3:20 am

    IS GOING TO WORK WENDY…YOU WILL SEE !!! DEFY, DEFY, DEFY….

    Reply
  9. Grace McNabb

    December 16, 2017 at 5:28 am

    Wendy, what a trooper YOU are! I have grown up with you in Florida and my heart has kept track of you. You are remarkable! Also, I want a helmet just like yours, please tell me the details so I can have get too!

    Reply
  10. Cheryl

    December 26, 2017 at 8:05 am

    You are one amazing Woman, you can conquer anything superwoman

    Reply

Leave a Reply Cancel reply

Your email address will not be published. Required fields are marked *

 

Primary Sidebar

Wendy’s Lessons on Life and Death

https://vimeo.com/365134320?loop=0

About Me

Cancer Survivor. Triathlete. Livestrong Advocate. Adventurer. Animal Lover. Ex-News Anchor. And maybe, Your New Best Friend. All while trying to make the world a better place. Read More…

Conquering Kilimanjaro


Learn more!

Help Wendy stand up to cancer by supporting clinical trials. To find out more, check out:
-- standup2cancer.org
-- clinicaltrials.gov
-- Pelotonia

The Power of Clinical Trials

Looking for Something?

Recent Posts

  • Now, I’m Down in It
  • Never Say Never (AKA White Flag for Chemo)
  • The Introduction of the “H” Word and Other Shit
  • Oh, THAT Rabbit Hole.
  • It’s Really Not About the Bike

People are Talking!

  • Barbara on Now, I’m Down in It
  • MJ on Now, I’m Down in It
  • Don Rockwell on Now, I’m Down in It
  • M on Now, I’m Down in It
  • Cheryl on Now, I’m Down in It

Powered by Growing Bolder


© 2006–2025 BOLDER BROADCASTING INC. ALL RIGHTS RESERVED.

THE VIEWS AND OPINIONS EXPRESSED ON THIS SITE ARE THE RESPONSIBILITY OF THE FEATURED BLOGGER AND ANY VISITORS WHO DECIDE TO COMMENT. THIS CONTENT DOES NOT NECESSARILY REFLECT THE IDEAS, OPINIONS, AND VALUES OF GROWINGBOLDER.COM. IF YOU HAVE ANY CONCERNS ABOUT THE CONTENT PLEASE SEND AN INQUIRY TO FEEDBACK@BOLDERMEDIAGROUP.COM.


Terms of Service - Privacy Policy