The lead in this story is that the proton therapy is working. I’m 15 days in now (5 to go!). Dr Simone said I probably wouldn’t notice improvements in breathing and heart function for two weeks, but things started getting better after five days. My heart rate used to cap out at about 117 during…
Livestrong
A Bit of Reality, then things got unBELIZEable (and now, I can’t Belize it, but I’m in the hospital)
“Well, your disease is stable. In a couple of places, we could say there’s a small amount of shrinkage.” Everyone stares at everyone until I say, “Well, that complicates things doesn’t it?” I’d added on one more month of the CRLX101 trial, just to keep that option open after my last CT scan showed growth,…
A Change Would Do You Good
Allow me to pilfer Sheryl Crow lyrics to head up this post. The song has been bouncing around in my head for a couple of weeks now. That and David Bowie’s Ch-ch-changes. Guess what: Changes in my protocol are looming. And that’s a good thing. I haven’t altered my lifestyle much except for the intensity…
Dogleg Left, Dogleg Right**
There hasn’t been much straightforward with my treatments or trials. We forge down one path, and when it starts getting too gnarly to pass through, we find another. That’s about where we are right now. My CT scan shows growth of 16%, but Dr Thomas says some areas have more growth than that. 20% is…
Yes, You Can or YES, YOU CAN!
You can pick up doses of inspiration where you least expect it. I was suffering through an Orangetheory Fitness class about a year ago with a coach I had decided I wasn’t going to like. I thought she was too serious and kind of stern… I thought she was exactly what I didn’t want at…
Just Zigzagging my Way Through All of It
The subtitle could read: Vein Procedure-Pearl Jam. Another Surgery Ahead-Tour of Utah. Less Stable Tumor Stability-A Perfect Bike Picture. In other words, like the intention in my hot yoga class today, we are focusing on opposites, yin-yang, pushme-pullyou, Oscar and Felix. I’ll start with some less-than-awesome medical stuff first, so I can end with a…